100% of your donation funds research at The Mesulam Center for Cognitive Neurology and Alzheimer's Disease at Northwestern University's Feinberg School of Medicine.
In partnership with Northwestern University’s Feinberg School of Medicine, Run4Papa has launched an initiative to raise funds for developing and implementing integrated care programs for individuals with Primary Progressive Aphasia (PPA). The path forward will require that we collaborate with speech therapy specialists and provide the most updated technology and services for individuals with a diagnosis and their family members. We are excited to go down this path, but need your help!
Our Goal: raise $13,100 to match the 13.1 miles Run4Papa will cover in each state. We will continue marching toward raising dementia awareness across this country by running 50 half marathons in all 50 states. Your essential pilot funding donation will support an international groundbreaking PPA Communications Bridge study that will guarantee our patients are the beneficiaries of the latest medical research at Northwestern. We are approaching Round 3 of 3 on the path to "full implementation."
As a friendly reminder, 100% of your donation will go directly to fund dementia research. All trips below are self-funded.
Cost of shipping intervention materials to participants.
Speech therapy tools (communication board, books, wallet).
Intervention equipment required for sessions (speakers, microphones).
Cost of a speech therapy session for participants.
Cost to keep the communication bridge website running per month.
Creation of a new aphasia-friendly education program/materials for individuals with PPA, their families and friends. These materials will help increase awareness and understanding of PPA.
The current Communication Bridge web application includes more than 20 instructional, strategy, and educational videos, which can be viewed on-demand. New video content and revised videos are needed. The creation of aphasia-friendly web application videos support the intervention and provides the family with the ability to reinforce the content they learn during sessions. The video will be supported by closed-captioned text to support comprehension of the material.