Fundraising for Rare Eye Disease Research

A Few Words from Katie

Pars Planitis is a disease that has impacted my life since I was 6 years old. My first eye surgery was at the age of 9 years old and I’ve had 7 total eye surgery’s as of now. Dr. Goldstein has been my doctor since I was first diagnosed and has done everything in her power to keep my vision as strong as possible. I’ve been legally blind in my right eye since I was 6 years old and as of August 2017 I’ve had vision loss in my left eye. The video above highlights the double vision I’ve been living with. Even though I’m legally blind in my right eye, I still see light, outlines of objects, and colors. Supporting this cause would impact my eyes as well as thousands of other patients under Dr. Goldstein’s care. The future of my sight is not guaranteed, since so little is known about Pars Planitis. Donating will provide opportunities for further research into rare eye diseases, like Pars Planitis. Finding a cure is my personal goal, but gaining new treatment is just as important.

Dr. Debra Goldstein

The aim of Dr. Goldstein’s research is to help better understand the causes of uveitis in both children and adults, as well as to best define appropriate treatments. She is currently involved in multiple clinical research projects. She has just completed a clinical research project with a colleague, Dr Anjum Koreishi, helping to better define the clinical spectrum of ocular findings in a condition known as TINU (tubulointerstitial nephritis and uveitis syndrome), which tends to occur most commonly in children. She is also currently investigating the outcome of children with uveitis who have failed conventional therapies, and are being treated with newer investigational therapies.  While some of her research projects are funded by government or industry grants, these two projects as well as many others currently have no funding. Any donation, small or large, can help us to better understand the nature and treatment of ocular inflammatory diseases.